One dear friend wrote and told me that she doesn’t know what to say, and I’ve had people tell me this on the phone too. We don’t expect anyone to have answers to these extremely complicated questions. But we have yet another complicated question to add to the mix today.
Phil is currently taking an antibiotic by IV for the blood infection every six hours at the hospital. Doctors are recommending that Phil move to a rehab center for four weeks in order to get the IV antibiotic every six hours. Under most circumstances, someone — either the patient or a relative in the home — could be trained to do this. But we don’t have a situation like this. It’s not something either one of us can do, because we can’t see the stuff going out of the tube or watch for bubbles in the tubing. If I was the patient, I would comply with the doctor’s wishes. If I had a job, I’d see how much of it I could do by computer and phone for the time I’m there. But I am not the patient. Phil has said he absolutely can’t endure four weeks of institutionalization. He wants to be able to come home and be at work as much as possible. He basically feels pretty good, so slowing hinm down is not something in which he’s interested.
I’ve always said I would support decisions like this even if they are risky. Would I do the same thing in his shoes? Probably not. But the restrictions this would entail are too much for himk, so I’m supporting him in taking chances.
The tricky thing about this blood infection is that it can kill, and it can do it quickly. He was asked if he understood it was risking his life, he said yes. Being basically imprisoned and away from me, his dog, his home, and his work site isn’t life for him. He is asking for them to come up with an alternative solution. He’s willing to go into the infusion center for treatment if that’s an option.